Dystonia in the News

This is indeed an amazing family. The parents have two children with generalized dystonia and they are making huge efforts to raise money for research into a possible cure for this illness. You can visit their website at: www.tylershope.org.

There are days when my own dystonia is well under control and you would not be able to see any effects from it. And then there are days (like most of this past week) when I tend to feel like dystonia "has me" rather than me "having dystonia". I have come to refer to it as "dis {a.k.a., this} Tonia", actually, as it seems like there is something or someone who wants to take over my body. I am thankful for the unique opportunities I have been given to share His light with others through my dystonia "connections", though.